Saturday, October 07, 2023

My cancer journey...the diagnosis

 Setting the stage...

When I was nursing my second child, I would often get "lumps" in my breasts.  I'd dutifully report it to my OB/GYN and we would decide that they were cysts and I'd move on with my life.  So, when I reported a new lump in my breast during an annual exam in July, despite the fact that it had been sixteen years or so since I was last nursing, we weren't too worried about it.  We identified that I was due for a mammogram anyway, and so I kind of just forgot about it.  

I have been getting mammograms since I turned 40, since there is a history of breast cancer in my family.  Each year, after the scans, I get the same notice, something akin to "you have very dense and lumpy breasts, we can't see shit". Despite this, I still went, and even upgraded to the 3D version (excerpted to the left). Then, in 2020 (yay! COVID!) the radiologist "saw something" on the scan of my left breast and so I was sent for biopsy, which ended up being surgical because they couldn't get a good enough view/angle for a core biopsy.  Thankfully, what they found was benign, attributed to something like calcifications. Since then, all of my scans were negative, accompanied by notes such as (in my best Mr. Mackey impression) "It'd be great if you could just iron out all of those lumps and pump some air into those suckers to make our lives easier, mkay?".

Fast forward to 2023 after said REAL lump inspection. I went for my mammogram in early August and got a prompt message from my radiologist that I needed to return for a diagnostic ultrasound to confirm an unusual finding, this time in my right breast. It took a few weeks to schedule, and given my last scare that ended up as nothing, I was much less concerned. That day, however, after the scans, it was apparent that something was wrong. This was different than the last time. There was a sense of urgency in the radiologist when they reported to me that I need to have a biopsy, and that they had scheduled me an appointment with the surgeon the following afternoon.  I sat in my car and cried, and called my husband who is currently living over 2000 miles away.  But, both of us being scientists, we decided it wasn't worth freaking out until we had facts that would warrant it...at this point we only had the suspicion.   

My biopsy was scheduled for the following week.  It was an ultrasound guided core biopsy of two separate lumps, which ultimately come to be affectionately known as 11:30 and 3 o'clock, based on where they're located in my breast. They also insert and leave little metal clips in there so that the radiologist/surgeon can identify them on subsequent scans.   A few days later, in early September, we got the news that I was dreading...I do indeed have cancer. And, because I'm such an overachiever, I have not ONE but TWO different cancer types. Thankfully I was visiting my husband when I got the news and so had support there with me when I heard.

And now the details...

From https://www.cancer.org

Meet my friend 11:30

This one is an invasive lobular carcinoma, grade 2, N+3 cm. Invasive means that it has spread into surrounding breast tissues, lobular means that it started in the glands that make milk. 3 cm is the size of a grape. In my case, grade 2 means that it's over 2cm but it hasn't yet spread to local lymph nodes (they think). It is accompanied by lobular carcinoma in situ with atypical lobular hyperplasia, meaning that abnormal cells are remaining in the lobule, or milk gland.  11:30 is both estrogen and progesterone receptor positive (so, hormone receptor positive), HER-2/neu negative (this is a protein that helps cancer cells grow more quickly...it's good that mine is negative).  It's Ki67 score is 5%...this means that among the total number of cancer cells in the section, only 5% of them are actively dividing, or making copies of themselves.  A score of 5% or less is good, it means it's slow-growing.  It's also E-cadherin negative, which is how they are able to discriminate it from ductal carcinoma.


Don't forget 3 o'clock

This one is an invasive ductal carcinoma, grade 1, N+2cm.  Again, invasive means that it has spread into the surrounding breast tissues, ductal means that it started in the milk ducts - the tubes that carry milk from the lobules to the nipple.  2 cm is the size of a peanut.  Grade 1 means that it's slow growing (yay!).  I also have ductal carcinoma in situ, grade 2.  It means that the cancer is also in it's original place and hasn't escaped some ducts.  Grade 2 means that it has an intermediate risk of returning after treatment.  Like 11:30, 3:00 is hormone receptor positive and HER-2/neu negative.  It's Ki67 score is a little higher, 5-10% (which I think it still considered low.  It's E-cadherin positive which is how they know it's ductal.  

So what's the plan?

It's hurry up and wait.  Get blood tests to make sure I'm otherwise healthy, do genetic testing to see if I have the BRCA mutation or other genes that would be predictive of a more severe/aggressive cancer (or higher additional cancer risk), have an MRI to see if there was additional cancer that the ultrasound couldn't see, and talk with the surgeon, the plastic surgeon, the medical oncologist and the radiation oncologist to define my course of action.  Then decide if I can (or should) save the ta-tas.  



Monday, July 31, 2023

Just keep swimming...

The summer of '23 has been an eventful one. It's incredible how life events can be all-consuming and then there comes a lull leaving me to wonder what the heck to do with my time.  

First, the craziness:  we moved to New Mexico.  This means that we needed to sell our house in Massachusetts, celebrate my older son's high school graduation, hold an estate sale to downsize all of our stuff, move some things to an apartment locally (long story) and then move what was remaining to NM, and close on the sale of the houses.  

My husband is working full time in NM, and I was holding down the fort in MA, both looking for work and trying to manage all of the moving requirements.  I was also trying to manage my sanity; it's quite hard to transition from a high-power biotechnology executive to a lowly job seeker in an environment that has been seeing a massive downturn in both investment and solvency. So, to add to the stress of the moving, I was also taking an Executive Education course to try to expand my CV.  What was I thinking?  Seriously.

In any case, the movers came to the house on June 1st to pick up the boxes and furniture that were going to the apartment. My son picked up the apartment key and I stayed at the house to oversee the packing and loading.  My younger son was still in school.  That night the older son had prom.  I scrambled to get the apartment livable (at least make up beds and get out the coffee maker) because my sister her husband were arriving that night and needed a place to sleep.  The house was all packed up and there wasn't a bed for them there!  We managed to get them from the airport, get my son to prom, and have everyone with a bed. EXCEPT that my brother-in-law forgot that my son was coming in to the apartment through the garage (which has a key code) and did not have an apartment key.  He was locked out.  Neither my sister nor brother-in-law heard him banging on the door and so he had to call me to drive down to the apartment at 2am and let him in.  Ei yi yi...the best laid plans.

The remainder of the family arrived on June 2nd.  This included my husband from NM, four relatives from AZ, and four relatives from CA.  They were all staying in a house that we rented for them in RI (it's a bit far, but we were hoping for some gorgeous beach weather...boy were we wrong).  My older son's team made it to the state finals for his sport, and so we had to travel for their first match to the north of the state...just to make it challenging.    

On June 4th, we had a photo session scheduled with a professional photographer.  It had been torrential rain for days and we didn't think that we were going to get it in, but we had a miraculous (but cold) window in which there was minimal precipitation. We had family ranging from 79 years to six months in age, all with different needs, but because it was so rare that we were all together in one place, we thought it was important to keep.  We froze through graduation, the younguns (and old-uns) left a little early to warm up in the apartment, and then went to dinner at an Inn.  It was a beautiful day.  

On Monday June 5th I had the fire department at the house - they had to inspect the smoke and carbon monoxide detectors to make sure they were up to code (they weren't...yay, more headache). I also had a call with a recruiter about a new job opportunity.  Yay!  

The next day, my husband had to head back to NM for work, and my older son had another game for the state finals. This also happened to be in Northern MA, so it was a hike for the family who were in RI, but they wanted to come and see him play since they hadn't gotten to throughout his high school career. I had the phone screen for the job, and it went well...we decided to follow up with more of the team. The next two days were spent in RI with the family (in the rain...lots of playing cards and putting together puzzles).

Thursday I had a call for my consulting work (keeping myself busy), and Friday we brought my son's car into the shop to make sure it'd be able to make the trek to NM, I had to order a personalized cake for his team party (he was a captain), and I had an introductory discussion with a second company for which I through my hat in the ring.   

Saturday, the family left for their respective homes.

Sunday. Breathe.

Monday the 12th saw the team from the estate sale company arrive at the house for staging and pricing of objects.  It's a little disconcerting to see people rifle through your things and put numbers on items that you think are invaluable. I understand why they prefer that owners aren't around for haggling with estate sales now.

Tuesday through Thursday were spent networking, interviewing for the jobs I was hoping to land, and unpacking the rest of the apartment so that we were comfortable in our new space. My son had kind of taken over the apartment and it looked like a true bachelor pad...not something that I wanted to move into.  It needed cleaning and unpacking, arranging, and perhaps a little bit of a feminine touch.

Friday was the estate sale.  It was also the last day of school for my younger son.  Lots of transition.

The following week was spent interviewing for jobs, packing up the house and the rest of the things that didn't sell in the estate sale, and hiring 1-800-got-junk to get rid of all the rest of the stuff that we didn't need in NM and that didn't sell and that Goodwill wouldn't/couldn't take.  They loaded our moving truck for NM on the 20th of the month, the dumpster came on the 22nd, and I spent Friday cleaning and ensuring the house was empty. 

On Tuesday, the 20th, I went out to treat the water of our hot tub, it's usual 1X per week chlorine check. It. Was. Not. Working.  I couldn't get the darn thing to turn on (and usually it's just always on). I called for service and they couldn't come until Thursday the 29th.  We were supposed to close on the 26th.  I called every pool place I or our real estate agents could think of.  No one could come and fix it (until after the closing).  Through our lawyer, we offered the prospective new owners a check for $1500 (and the appointment that I had secured with a deposit) and hoped they would close without issue. The spa repair company stated they thought the repair would run anywhere from $50 - $1500, so we just went with the high end to make it easy. On the 26th, the day of the closing, the buyers balked and stated that in order to close, they wanted a $5000 hold back (kind of like escrow) until the repair was completed. It was over the top.  They wouldn't budge.  So we finally agreed.  The repair cost $35.   

Our furniture was delivered in NM the week of 4th of July.

I didn't get either job.  



Friday, August 29, 2008

Mommy 101

So, my kids have have no day care this week and I've been mommy extraordinaire. We've had adventure after adventure, and I'm thoroughly exhausted. It's amazing that I can work 10-12 hours a day at my full-time job, run entire teams and multitask like crazy, but when it comes to tending to a 3- and 2- year old, I'm zonked.

We went to Davis Farmland yesterday, which is a huge petting zoo with a separate water park. I was there with the boys and feeling a little overwhelmed when I saw a mom with two kids who were about the same age except both were deaf. WHAT a challenge. When my kids run opposite directions, I can yell at one or the other and tell them to stop, and they generally do. When her kids ran opposite directions, unless they were looking at her, she couldn't get their attention to tell them to stop. Now THAT's a challenge. She'd have to run and catch one and then run and catch the other and then yell at them in sign language.

I was still exhausted, but I felt a little less like an uber-mom after that. It was very humbling...

Sunday, March 04, 2007

I'm a hypocrite

We were at the Bruins/Flyers game the other night, and there were a bunch of servicemen and women there from the USS John F. Kennedy, which was in port for the weekend. Apparently Boston is the ship's home port, and it was docking here prior to being decommissioned. They made an announcement to this effect at the game, and there was a standing ovation. I readily joined in for the ovation, I truly appreciate the role that the ship and the military have played (and still is playing) in keeping this country safe and protecting our freedom. But, and this is the reason I am a hypocrite, in the same time that I was cheering the ship and it's crew, I was thinking "not my sons".

The irony is that after September 11th, I actually gave a little thought to joining the military. I really wanted to do something to help protect us from people who want to hurt us for no reason. Now that we've given pretty much all of the Middle East a good reason to hate us, I consider myself lucky that I didn't join. There's a fine line between fighting for freedom (and against terrorism) and fighting an unwinnable war for an ignorant president with a Napoleon complex. This war in Iraq has somehow made most Americans forget that we still haven't nabbed the person responsible for organizing the 9/11 attacks in the first place. Talk about wag the dog.

How in the world do I let the people fighting for us know that I support them personally but that I can't bring myself to support this war?

Tuesday, February 27, 2007

Globetrotters

We took our sons to see the Globetrotters this weekend, and it was just as fun as I remember it being as a kid. Of course, we were way up in the nosebleed section, but the antics were entertaining nonetheless. Some of the routines are EXACTLY as I remember them from when I'm growing up (like the bucket of water that really contains glitter), and some of the routines are updated to fit the times. My 2-year old had a great time, and actually didn't even fidget throughout the game (it could have had something to do with the sno-cone and the giant pretzel too, but I think he was entertained too).

My favorite Globetrotter growing up was Curly, he was AWESOME. He could dribble like nobody's business, and he always seemed so little to me, although he was probably at least 6 feet tall, it's just that the other guys were all HUGE. I also remember that the Globetrotters were occasional guests on Scooby Doo. There was one, who's name I can't remember, had a HUGE afro on Scooby Doo, and he would often pull random things out of his 'fro. It was hysterical. I think they also made a movie.

The modern Globetrotters actually have some of the same character names (for example, there is a Curly in this permutation of the Globetrotters). It's amazing that they are entertaining my children as they entertained me throughout my childhood. I give many kudos to the creator of this industry that began all the way back in 1927 and continues today with wholesome and fun family entertainment.

Saturday, February 24, 2007

New Job!

Finally, I have landed a job! It only took me what, 14 months? How sad is that?

I start March 13th, it's a brand new start-up company, I'm among the first five employees there. It's going to be an immense challenge but I think it will be a rewarding endeavor. I like the atmosphere of start-ups. The camraderie and the sense of purpose that comes with the need to ultimately meet a goal before the money runs out is quite compelling.

Wish me luck! Woo-Hoo!

Monday, February 05, 2007

Gives New Meaning to "Don't Eat the Yellow Snow"

Hat tip to my friend Rob who pulled out this recent news clip:

Yellow snow falls in Omsk Region (Russia)


On January 31, snow colored from light yellow to orange and with oily slicks and musty smell fell in five districts of Omsk Region (Russia). Under preliminary reports, the territory covered by the colored snow is about 1,500 square kilometers. 1,200 households are located in the territory, where about 28,000 people live, REGNUM was informed at the information department of the Russian emergence ministry.

Emergency specialists of Omsk Region informed the people on precaution measures. In particular, they are advised not to use snow in housekeeping, and abstain from taking livestock to the territory and visiting the area by humans. There have been no complains about health problems from local residents. Experts of the emergency ministry and sanitary inspection took samples of the snow for tests, results of which are expected soon.


All I can say is *YIKES*